Patient or Citizen Involvement (PCI) in Healthcare Decision Making in Low- and Middle-Income Countries


With this short survey, we aim to learn how patients or citizens can participate in Health Technology Assessment (HTA) or healthcare decision making in Low- and Middle-Income Countries (LMICs).

Thank you for helping us with collecting this information relating to identify routes for participatory decision making in healthcare. We will share our findings back with all respondents who leave their E-Mail address with us. You can also complete the survey anonymously.

BACKGROUND: The Developing Countries Interest Group (DCIG) and the Patient and Citizen Involvement Interest Group (PCIG) of HTAi (Health Technology Assessment international; www.htai.org) are currently collaborating in a project with the objective to (1) explore the current routes of patient involvement in Low-and Middle Income Countries (LMICs), (2) collaborate with LMIC stakeholders to define LMIC-specific needs for patient involvement, and (3) develop and adapt guidance and tools to support patient and citizen involvement in HTA in emerging economies.

To identify routes for participatory decision making in healthcare and examples, where patient or citizen advocates were able to represent the patient perspective, formally or informally, in HTA or decision making in LMICs, we are asking for your support and help. If you are aware of such examples, please let us know by filling in our short survey below.

There are 13 questions in this survey.
Personal Information


* From which country’s health system’s perspective will you be completing this survey?

HelpPlease write in  the text field, which country (or country and region or other specifications) you are referring to.
* How would you classify your contribution/ engagement to the health system of the county you are completing this survey for?
Check any that apply
HelpPlease chose all descriptors which apply to you (several answers possible)
PCI_Questions


Does your country’s health system currently employ e any forms of Health Technology Assessment (HTA) ?

 


Choose one of the following answers

Help

A Health Technology is an intervention developed to prevent, diagnose or treat medical conditions; promote health; provide rehabilitation; or organize healthcare delivery. The intervention can be a test, device, medicine, vaccine, procedure, program or system.

Health Technology Assessment is a multidisciplinary process that uses explicit methods to determine the value of a health technology at different points in its lifecycle. The purpose is to inform decision-making in order to promote an equitable, efficient, and high-quality health system. (see also HTA Glossary on the HTAi Website; http://htaglossary.net/health+technology+assessment)

Does a process exist in your country, by which patients, citizens, or patient advocacy groups give their input into HTAs conducted?
Choose one of the following answers

HelpHTA = Health Technology Assessment = A multidisciplinary process that uses explicit methods to determine the value of a health technology at different points in its lifecycle. The purpose is to inform decision-making in order to promote an equitable, efficient, and high-quality health system.
Are  patients, citizens, or patient advocacy groups able to influence healthcare decisions in your country?
Choose one of the following answers

HelpWith healthcare decisions we mean decisions on coverage, reimbursement, listing, pricing of health technologies or access to them.
Why, in your opinion, should patients or citizens be involved in health technology assessment or healthcare policy evaluation in LMICs?

Help

LMIC = Low- and Middle-Income Country

Examples for reasons: Fairness of decisions, Better decisions, considering the most relevant outcomes, PCI is not important in LMICs, principle of democracy, better acceptance of decisions by patients, ............

What, in your opinion, are the challenges for patient and citizen involvement in HTA or decision making in your country?
Check any that apply
Comment only when you choose an answer.
HelpHTA = Health Technology Assessment
Are you aware of examples for PCI in HTA or healthcare decision making in your country?
Would you be interested in supporting this research by contributing to a more in-depth description  (together with other stakeholders from your country) as to how Patient and Citizen Involvement (PCI) can/may happen in your country?
Choose one of the following answers

Would you like to receive the results of this survey?